Ok – so 2 days after the infusion and I feel “changes” for the better. I dont want to jinx it but have some questions. My right side is affected by my MS and I have Foot Drop (have to use a WalkAide), balance issues and right arm/hand range of motion/strength issues.
My hand feels stronger and my range of motion has increased. I can’t tell much with the leg/foot although things feel “different”. With MS I felt everything progressing in the wrong direction (I’ll call this white to dark gray). I’m feeling the dark gray getting whiter. Don’t know how else to explain.
-Will I be “jonesing” for my next infusion?
-Will things progress positively for a week or two and then go backwards as the medicine wears off?
-Does the Tysabri “wear off”?
-When I had optic neuritis, I had a 3 day drip of solumedrol (steroids) and my vision went from 15% back to 90-95% and has been “good” with out issue for the past 2 years. Is Tysabri like steroids in this regard?
What have you all experienced while on Tysabri? Right after the infusion? 2 weeks after? 1 month after? Just prior to next infusion?